CFDA Releases 4 Important Draft Regulations for Public Comment
Source From RDPAC? On 11 May 2017, CFDA released a set of three draft regulation for comm...
3 Year ago (2017-05-31)
Our Rare Story: ICORD 2017 Calls for Patient Speakers
Dear Friends, The International Conference on Rare Diseases & Orphan Drugs (ICORD) ?i...
3 Year ago (2017-05-12)
How does it feel to be invited by a French family?And as a disabled Chinese woman
How does it feel to be invited by a French? Before I could answer this question, I want to...
3 Year ago (2017-05-11)
My name is JI Xun, and my friends also call me Illidian. I am a Chinese, wheelchair user, CMT patient, rare disease patient advocate, world traveller and journalist. I have lived in China, US, and France, and traveled to over 20 countries.
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